It all began with a bump on the head. We heard her crying in her cot, we went to check on her, and found her scrunched in the corner of the cot. It looked like she’d bumped her head on the bars, we gave her a cuddle, kissed her head and she soon stopped crying. … Continue reading How Hannah was diagnosed. Part 1: The Bump
This stage should have lasted for 78 weeks, or 547 days. But, due to delays during her intensive stages, her's lasted 61 weeks and 4 days, or 431 days. Here is a breakdown of Hannah’s maintenance treatment: Chemotherapy (oral): Mercaptopurine: Once daily, 431 days. Methotrexate: Once a week, 61 weeks. Intrathecal chemotherapy (into spinal fluid):… Continue reading Hannah’s treatment plan, maintenance, final stage, (431 days).
In extremely rare cases, the cancer found, remains unknown, and consultants have a difficult task of working out a treatment plan. Fletcher was one of the first children that we came to know, and we befriended his parents, Lee and Leanne Fisher. It broke our hearts when we heard that the doctors couldn't save him.… Continue reading Fletcher’s Cancer Story
This stage lasted 7 weeks, and was split into 2 parts. It was the intention, that she’d have 4 weeks on, 1 week off, then 2 weeks on. But Hannah had more delays due to being neutropenic, 3 weeks delays in total. She also had a few infections to contend with, she was able to… Continue reading Hannah’s treatment plan, fourth intensive stage, OCTADAD (50days)
She was able to start this stage after a 3 week delay, which made it 5 weeks in total, since her last dose of chemo. We ended up spending most of this stage in hospital, due to line and viral infections. We also had news, that a very small percentage of the leukaemia cells had… Continue reading Hannah’s treatment plan, third intensive stage, MARMA (29 days)
Many cancer journeys, involve multiple types of treatment, each having various ways of targeting the cancer cells and tumours. Riley's mother, Sophie Hoult, takes us through his extensive treatment plan, and how scary the side effects can be. Riley is now 19 months into remission. Name: Riley Hoult Age at diagnosis: 21 Months Old Diagnosis: Stage 4 High… Continue reading Riley’s Cancer Story
It was during this stage, where Hannah’s trend of having constant delays to treatment began, if her immune system is too low (neutrophil levels), she has to have a pause in treatment. Her final dose of this stage, was given after a 3 week delay (pictured). Here is a breakdown of Hannah’s second intensive stage… Continue reading Hannah’s treatment plan, second intensive stage, Protocol IB (29 days plus delays).
There are different treatments for each individual cancer type, and even those who have the same type of cancer, will be on a different plan. There is no "One size fits all." Because of this, I can only give you details of my daughters treatment. Treatment for Acute Lymphoblastic Leukaemia includes a wide range of… Continue reading Hannah’s treatment plan, first intensive stage, Induction (36 days)
Experts are still on the fence on whether Histiocytosis is a cancer or not, it is however treated as such. Evie's mother, Sarah Thompson, explains the difficulties of getting something extremely rare diagnosed. Name: Evie Violet Hewitt Age at diagnosis: 2 Diagnosis: Juvenile Xanthogranuloma (JXG) Histiocytosis Additional info: Evie's ocular involvement was almost unheard of, because… Continue reading Evie’s Cancer Story
A rare cancer story, from mother, Erika Shaw, about her beautiful son, Fidel. Misdiagnosis is a huge problem when it comes to childhood cancer, sometimes the right diagnosis comes too late. More needs to be done. Name: Fidel N Gallegos Jr Age at diagnosis: 6 weeks Diagnosis: Rhabdoid Tumor Atrt Additional Info: The cancer after further researched… Continue reading Fidel’s Cancer Story