I’m not entirely sure how to write this. I haven’t been active on the blog side of things lately. My thoughts have been jumbled, doubt setting in, and I’m struggling to put my thoughts into coherent sentences. It's taken me over a month to find the courage to write this. These are the various thoughts… Continue reading How am I doing? I’m not OK.
End of treatment. It sounds so final, doesn’t it? The last milestone, the final hurdle, the finish line. The final goal, where we can get back to normal, and never have to worry about treatment again. But, it’s only the end of part one. For the first 6 months after treatment, if Hannah gets a… Continue reading End of treatment. Or is it?
Loss of appetite and stomach problems A couple of weeks into Hannah’s treatment, she had been getting fussy with feeds from her bottles, until she wouldn’t drink anything, it was the same with her food too. No matter what we tried, she refused. We had to start putting her formula down her NG tube. This… Continue reading Side effects from chemo, that Hannah had to endure. Part 4
Low blood counts Blood transfusions were needed often, both red blood cells and platelets. We began to recognise when she’d need one, if she became pale we knew that a red blood transfusion would be likely and if she had random bruises appear, then she’d need a platelet transfusion. Hannah’s had 15 blood transfusions during… Continue reading Side effects from chemo, that Hannah had to endure. Part 3
Rashes She’s had various rashes over the course of her treatment. One was an allergic reaction, she came out in a full body rash (a nurse said she looked like a red lobster), called the Red Man Syndrome, due to the antibiotic vancomycin, she will now always need a pretreatment when receiving this antibiotic. She… Continue reading Side effects from chemo, that Hannah had to endure. Part 2
There are a multitude of side effects to deal with during chemo. Over the next few weeks, I’ll show you some of what Hannah has had to cope with. Hair Loss We expected the hair loss, she lasted almost 3 weeks of chemo with her mousy brown hair, before she started shedding. It was just… Continue reading Side effects from chemo, that Hannah had to endure. Part 1
We arrived at the Children’s Medicine ward, and spoke with two doctors, in an empty bay area. They told us, Hannah’s biopsy came back showing cancerous cells, but they didn’t know what they were dealing with, more tests would need to be done on the samples taken. After being left alone to deal with the… Continue reading How Hannah was diagnosed. Part 3: It’s Cancer
It all began with a bump on the head. We heard her crying in her cot, we went to check on her, and found her scrunched in the corner of the cot. It looked like she’d bumped her head on the bars, we gave her a cuddle, kissed her head and she soon stopped crying. … Continue reading How Hannah was diagnosed. Part 1: The Bump
This stage should have lasted for 78 weeks, or 547 days. But, due to delays during her intensive stages, her's lasted 61 weeks and 4 days, or 431 days. Here is a breakdown of Hannah’s maintenance treatment: Chemotherapy (oral): Mercaptopurine: Once daily, 431 days. Methotrexate: Once a week, 61 weeks. Intrathecal chemotherapy (into spinal fluid):… Continue reading Hannah’s treatment plan, maintenance, final stage, (431 days).
This stage lasted 7 weeks, and was split into 2 parts. It was the intention, that she’d have 4 weeks on, 1 week off, then 2 weeks on. But Hannah had more delays due to being neutropenic, 3 weeks delays in total. She also had a few infections to contend with, she was able to… Continue reading Hannah’s treatment plan, fourth intensive stage, OCTADAD (50days)