End of treatment. It sounds so final, doesn’t it? The last milestone, the final hurdle, the finish line. The final goal, where we can get back to normal, and never have to worry about treatment again. But, it’s only the end of part one. For the first 6 months after treatment, if Hannah gets a… Continue reading End of treatment. Or is it?
We arrived at the Children’s Medicine ward, and spoke with two doctors, in an empty bay area. They told us, Hannah’s biopsy came back showing cancerous cells, but they didn’t know what they were dealing with, more tests would need to be done on the samples taken. After being left alone to deal with the… Continue reading How Hannah was diagnosed. Part 3: It’s Cancer
We’d arrived at A&E, went through initial assessments and were sent up to the Children's Assessment and Treatment Unit (CAT unit), as there was a junior doctors strike on, we were in for a long wait. Hannah was seen by one of the senior doctors, we went through more assessments, and he examined her, asked… Continue reading How Hannah was diagnosed. Part 2: Abuse or Medical
It all began with a bump on the head. We heard her crying in her cot, we went to check on her, and found her scrunched in the corner of the cot. It looked like she’d bumped her head on the bars, we gave her a cuddle, kissed her head and she soon stopped crying. … Continue reading How Hannah was diagnosed. Part 1: The Bump
This stage should have lasted for 78 weeks, or 547 days. But, due to delays during her intensive stages, her's lasted 61 weeks and 4 days, or 431 days. Here is a breakdown of Hannah’s maintenance treatment: Chemotherapy (oral): Mercaptopurine: Once daily, 431 days. Methotrexate: Once a week, 61 weeks. Intrathecal chemotherapy (into spinal fluid):… Continue reading Hannah’s treatment plan, maintenance, final stage, (431 days).
This stage lasted 7 weeks, and was split into 2 parts. It was the intention, that she’d have 4 weeks on, 1 week off, then 2 weeks on. But Hannah had more delays due to being neutropenic, 3 weeks delays in total. She also had a few infections to contend with, she was able to… Continue reading Hannah’s treatment plan, fourth intensive stage, OCTADAD (50days)
She was able to start this stage after a 3 week delay, which made it 5 weeks in total, since her last dose of chemo. We ended up spending most of this stage in hospital, due to line and viral infections. We also had news, that a very small percentage of the leukaemia cells had… Continue reading Hannah’s treatment plan, third intensive stage, MARMA (29 days)
It was during this stage, where Hannah’s trend of having constant delays to treatment began, if her immune system is too low (neutrophil levels), she has to have a pause in treatment. Her final dose of this stage, was given after a 3 week delay (pictured). Here is a breakdown of Hannah’s second intensive stage… Continue reading Hannah’s treatment plan, second intensive stage, Protocol IB (29 days plus delays).
There are different treatments for each individual cancer type, and even those who have the same type of cancer, will be on a different plan. There is no "One size fits all." Because of this, I can only give you details of my daughters treatment. Treatment for Acute Lymphoblastic Leukaemia includes a wide range of… Continue reading Hannah’s treatment plan, first intensive stage, Induction (36 days)