It all began with a bump on the head. We heard her crying in her cot, we went to check on her, and found her scrunched in the corner of the cot. It looked like she’d bumped her head on the bars, we gave her a cuddle, kissed her head and she soon stopped crying. … Continue reading How Hannah was diagnosed. Part 1: The Bump
This stage should have lasted for 78 weeks, or 547 days. But, due to delays during her intensive stages, her's lasted 61 weeks and 4 days, or 431 days. Here is a breakdown of Hannah’s maintenance treatment: Chemotherapy (oral): Mercaptopurine: Once daily, 431 days. Methotrexate: Once a week, 61 weeks. Intrathecal chemotherapy (into spinal fluid):… Continue reading Hannah’s treatment plan, maintenance, final stage, (431 days).
This stage lasted 7 weeks, and was split into 2 parts. It was the intention, that she’d have 4 weeks on, 1 week off, then 2 weeks on. But Hannah had more delays due to being neutropenic, 3 weeks delays in total. She also had a few infections to contend with, she was able to… Continue reading Hannah’s treatment plan, fourth intensive stage, OCTADAD (50days)
She was able to start this stage after a 3 week delay, which made it 5 weeks in total, since her last dose of chemo. We ended up spending most of this stage in hospital, due to line and viral infections. We also had news, that a very small percentage of the leukaemia cells had… Continue reading Hannah’s treatment plan, third intensive stage, MARMA (29 days)
It was during this stage, where Hannah’s trend of having constant delays to treatment began, if her immune system is too low (neutrophil levels), she has to have a pause in treatment. Her final dose of this stage, was given after a 3 week delay (pictured). Here is a breakdown of Hannah’s second intensive stage… Continue reading Hannah’s treatment plan, second intensive stage, Protocol IB (29 days plus delays).
There are different treatments for each individual cancer type, and even those who have the same type of cancer, will be on a different plan. There is no "One size fits all." Because of this, I can only give you details of my daughters treatment. Treatment for Acute Lymphoblastic Leukaemia includes a wide range of… Continue reading Hannah’s treatment plan, first intensive stage, Induction (36 days)
My daughter Hannah, and what led to her diagnosis.
Today we are sharing Hannah’s story by her Mum, Allison.
Hannah was diagnosed with Acute Lymphoblastic Leukaemia at 11 months old, on 23rd March 2016. She was in and out of hospital during the 9 months of intensive chemotherapy, she is now 9 months into maintenance treatment, thankfully she’s coping quite well and we’re hoping this can continue until end of treatment.
Was it quite easy to get a diagnosis or were there delays?
It was 13 days, between going to the doctors and getting a diagnosis. Her symptoms were bumps on her head and bruising all over, they did thorough scans, blood tests and a biopsy. This was an urgent matter, to rule us out as the cause. Her blood results didn’t show anything sinister, but the biopsy did.
That was very quick. It is not always the case though is it? It sounds like such an awful time…
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