Allison’s Blog

Cancer Life, Diagnosis

How Hannah was diagnosed. Part 1: The Bump

It all began with a bump on the head. We heard her crying in her cot, we went to check on her, and found her scrunched in the corner of the cot.  It looked like she’d bumped her head on the bars, we gave her a cuddle, kissed her head and she soon stopped crying. … Continue reading How Hannah was diagnosed. Part 1: The Bump

General

Liebster Award 2018

I got nominated by Just Soph and Riley (Thank you!) for the Liebster Award.  She's a fellow oncology mum, and her blog is about Riley’s journey through cancer, their daily lives, making memories & new journeys. What’s the Liebster Award? It’s an award in which bloggers nominate other bloggers for showing respect to their works and their dedication. It’s… Continue reading Liebster Award 2018

Cancer Life, Treatment

Hannah’s treatment plan, maintenance, final stage, (431 days).

This stage should have lasted for 78 weeks, or 547 days. But, due to delays during her intensive stages, her's lasted 61 weeks and 4 days, or 431 days. Here is a breakdown of Hannah’s maintenance treatment: Chemotherapy (oral): Mercaptopurine: Once daily, 431 days. Methotrexate: Once a week, 61 weeks. Intrathecal chemotherapy (into spinal fluid):… Continue reading Hannah’s treatment plan, maintenance, final stage, (431 days).

Cancer Stories, Rare Cancers

Fletcher’s Cancer Story

In extremely rare cases, the cancer found, remains unknown, and consultants have a difficult task of working out a treatment plan.  Fletcher was one of the first children that we came to know, and we befriended his parents, Lee and Leanne Fisher.  It broke our hearts when we heard that the doctors couldn't save him.… Continue reading Fletcher’s Cancer Story

Cancer Life, Treatment

Hannah’s treatment plan, fourth intensive stage, OCTADAD (50days)

This stage lasted 7 weeks, and was split into 2 parts. It was the intention, that she’d have 4 weeks on, 1 week off, then 2 weeks on. But Hannah had more delays due to being neutropenic, 3 weeks delays in total.  She also had a few infections to contend with, she was able to… Continue reading Hannah’s treatment plan, fourth intensive stage, OCTADAD (50days)

Everyday Life

Behaviour battles, getting Hannah to eat healthier food, and back to nursery.

Good job I’m shaving my head at the end of the month, as I’ve been very close to tearing it out. Hannah has seriously tested my patience this past week, it’s like a switch has been flipped, she falls to the floor on purpose, sometimes banging her head, thankfully not hard enough to do any… Continue reading Behaviour battles, getting Hannah to eat healthier food, and back to nursery.

Cancer Life, Treatment

Hannah’s treatment plan, third intensive stage, MARMA (29 days)

She was able to start this stage after a 3 week delay, which made it 5 weeks in total, since her last dose of chemo.  We ended up spending most of this stage in hospital, due to line and viral infections. We also had news, that a very small percentage of the leukaemia cells had… Continue reading Hannah’s treatment plan, third intensive stage, MARMA (29 days)

Everyday Life

Our new year began with cabin fever, a temperature panic, and exhaustion.

The new year began with a stall. Hannah, was still getting over her cold, and her nursery closed for building works, which I was a little relieved about, as I wouldn’t have taken Hannah in whilst she had a cold, and at least now she won’t miss out on anything. The downside, with her cold… Continue reading Our new year began with cabin fever, a temperature panic, and exhaustion.

Cancer Stories, neuroblastoma

Riley’s Cancer Story

Many cancer journeys, involve multiple types of treatment, each having various ways of targeting the cancer cells and tumours. Riley's mother, Sophie Hoult, takes us through his extensive treatment plan, and how scary the side effects can be.  Riley is now 19 months into remission. Name: Riley Hoult Age at diagnosis: 21 Months Old Diagnosis: Stage 4 High… Continue reading Riley’s Cancer Story

Cancer Life, Treatment

Hannah’s treatment plan, second intensive stage, Protocol IB (29 days plus delays).

It was during this stage, where Hannah’s trend of having constant delays to treatment began, if her immune system is too low (neutrophil levels), she has to have a pause in treatment.  Her final dose of this stage, was given after a 3 week delay (pictured). Here is a breakdown of Hannah’s second intensive stage… Continue reading Hannah’s treatment plan, second intensive stage, Protocol IB (29 days plus delays).